Her maintenance chemotherapy is due to finish in September 2022, with an extra six months a possibility. Instead, Isabellah had laser treatment to burn off the bits that were melting in case she choked, before going on to have nine rounds of intense chemotherapy, followed by six weeks of proton beam therapy in Manchester. With the tumour being where it was in her nasal pharynx, it was in an inoperable position and couldn’t be surgically removed. It was really difficult seeing her like this, but thankfully, she was back to normal pretty soon after her sedation finished. They kept her under sedation for two weeks and she was very out of it. Because of this problem with her breathing, she had to have emergency chemotherapy to shrink the tumour down, which melted off half of the dangling part of the tumour, and caused her to actually cough it out. For her own safety, she was then fitted with a tube to help her breathe, because the tumour was through her nose and dangling down the back of her throat, restricting her from doing so. It looked like she had stopped breathing, and it was absolutely terrifying to see. Firstly, Isabellah developed sleep apnoea, triggered by her tumour. I took her home, but by the next day, the snoring was that bad, I had to stay up all night. I wasn’t happy with that, so we went to A&E in our hometown, where we were told the same. Soon after, she developed bad breath and her beathing became difficult, so my husband Rob and I decided to take her to the GP’s, where she was twice diagnosed with polyps. For the first week and a half there were no problems at all, but after that, Isabellah started snoring, which she’d never done before, and she kept waking up asking to come into our bed. Soon after, we went to Wales for three weeks on holiday.
We certainly never thought it could be what it was.
She had a bit of a congested nose, which, at first, we thought was hay fever or a cold, or some sort of virus that she’d picked up at nursery. But this all changed when she began to develop symptoms a few weeks prior. Before Isabellah’s diagnosis, she was in nursery and absolutely loving it, while we were enjoying doing things with her during the summer.
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